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AFM Telethon

Sponsors » F.HOFFMANN – LA ROCHE

Satellite symposium sponsored by F. HOFFMANN - LA ROCHE

A patient-centered approach to SMA management and research

Wednesday, 16 March 2016
12:30-14:00 hrs
Salon Pasteur


Speakers:

Prof. Francesco Muntoni (Chair)
Professor of Paediatric Neurology and Honorary Consultant in Paediatric Neurology, Dubowitz Neuromuscular Centre, University College London & Great Ormond Street Hospital for Children, London, UK

Patient with SMA, Lille, France

Dr Françoise Rouault
AFM Téléthon, Evry, France

Marion Main
Senior Consultant Physiotherapist, Dubowitz Neuromuscular Centre, Great Ormond Street Hospital for Children, London, UK

Dr Serge Braun
Scientific Director, AFM Téléthon, Strasbourg, France

Dr Richard Finkel
Paediatric Neurologist, Nemours Children's Hospital, Orlando, FL, USA

 


Roundtable description:

This roundtable aims to bring patients to the forefront of the discussion. Experts in medical care and research, patient advocacy groups and those living with SMA will come together to share experiences. The patient journey, current standard of care, and needs and expectations of people living with SMA will be reviewed. This will be complemented by the experts' views on the mechanisms of disease, and concluded with a Q&A session with audience participation.